Neil Ranasinghe (BA) is the parent of a child who was diagnosed with leukaemia in 2003 when she was 4 years old, and has been in remission for ten years. Since then he has been involved with a number of cancer charities, contributing his expertise as a Technical Author, his degree in English, and his leadership capabilities. Outside his voluntary activities, Neil is a Senior Technical Author at Thomson Reuters.
Neil is a co-founder of a group of parents (PORT) that reviews documentation for parents and patients when asked to join a paediatric oncology clinical trial. PORT has reviewed documentation for over 30 clinical trials and advised on aspects of trials from a parent’s perspective.
He has been extensively involved in writing and managing the translations of a supportive care leaflet for families with a child with cancer. This supportive leaflet is available in English, Arabic, Bengali, Burmese, Hindi, Kannada, Nepali, Punjabi, Swahili, Tamil, and Urdu. The leaflet has been produced without any financial support whatsoever.
Currently, he is co-chair of the SIOP Global Health Education and Training Working Group, which is looking at ways to help clinicians from LMICs find the education or training that can help them treat children with cancer. His involvement with the SIOP Global Health Education and Training Working Group began with a single co-founder and a spreadsheet of training opportunities more than three years ago. Now the group has grown to six core members, and an additional 80 members , providing information about training courses and conferences, pairing with experts, adapted regimens, an enhanced spreadsheet, comprehensive website, and active social media presence.