The purpose of the Patient, Family and Stakeholder Engagement Working Group is to support SIOP Global Health Network in engaging patients, families and stakeholders in global efforts to improve the care and survival of children and adolescents across low and middle income countries; to liaise across SIOP Global Health Network Working Groups, as well as other external parties, to ensure that the voices of patients, families and stakeholders are present and active.

 

After a successful 9-country LMIC research project to document patient and parent/caregiver engagement during treatment, the Working Group has now turned its attention to survivorship. This aligns with the CCI focus on survivorship as well over the next 2.5 years. Guided by the expertise of 8 survivors from around the world (including LMIC), we aim to explore the survivor experience in LMIC and contribute to efforts to address challenges and improve quality of life.