We are delighted to announce the launch of a major World Health Organization study on the lived experience of people affected by cancer at the World Cancer Congress last week.
The study invites all people aged 18+ who have been diagnosed with cancer and their family members, to participate in a survey to help us understand their lived experience. By lived experience, we mean how the experience of cancer can impact different areas of people’s lives, including their social, emotional, and financial health.
The study is inviting the following groups of people aged 18+ to complete a 30-minute online survey which is available in 7 languages (English, French, Spanish, Russian, Mandarin, Arabic and Brazilian Portuguese).
- People diagnosed with cancer who
- Are currently receiving cancer treatment, or
- Are not currently receiving cancer treatment, or
- Have completed cancer treatment (i.e. survivors)
- Family members of people affected by cancer (including those who are receiving cancer treatment, whose who are not receiving cancer treatment, and those who have completed cancer treatment)
- Family members of a person who has died from cancer.
This online survey is hosted by the World Health Organization and will be disseminated with the help of partner cancer organizations. We are hoping for a strong representation from people living in Low-Middle Income countries, and from people with diverse educational and social backgrounds.
The link to the survey is:
https://extranet.who.int/dataformv3/index.php/663746?lang=en
If you have any questions about this research, please contact our team at whocancer@unsw.edu.au.
Thank you!
On behalf of ‘The Lived Experience of People with Cancer’ study team: Dr Julie Cayrol, Professor Claire Wakefield, Dr Lori Wiener, Dr Jordana McLoome, Dr Clarissa Schilstra, Mr Moses Echodu, Ms Ruth Hoffman, Dr Roberta Ortiz, Dr André Ilbawi
