
The SIOP-North America Executive Board has decided to stand with the Alliance for Childhood Cancer on two fronts this month, lending its name to a coalition of patient groups, clinicians, and researchers pressing Washington on issues that reach far beyond any single bill.
One effort looks forward: a letter backing the Lainie Jones Comprehensive Cancer Survivorship Act, legislation meant to close the long-standing gaps that leave childhood cancer survivors without coordinated care once treatment ends. For a community where surviving cancer often means living with its aftereffects for decades, the bill represents a chance to build the kind of follow-up care system that has never quite existed.
The other looks to defend what’s already been built. A second letter warns congressional leaders that a proposed OMB rule could unravel the research infrastructure childhood cancer science depends on, from independent peer review to the international collaborations that make rare-disease trials possible in the first place. The Alliance is asking Congress to push back before that infrastructure is dismantled.
By signing on to both, SIOP-North America joins a growing chorus of organisations arguing that progress against childhood cancer depends as much on steady, science-driven federal support as it does on the next breakthrough treatment.

